Organizing fundraisers for families with VEPTR (Vertical Expandable Prosthetic Titanium Rib) children can be both impactful and community-driven. Here are some creative and practical fundraiser ideas:
Community Events
Walk-a-Thon or Run for Ribs: Host a charity walk or run with participants raising funds through sponsorships.
Benefit Concert: Partner with local musicians to hold a live music event, charging an entry fee or accepting donations.
Family Fun Day: Organize a day with activities like face painting, games, bounce houses, and food trucks, with proceeds going toward the cause.
Sales-Based Fundraisers
T-Shirt or Wristband Campaign: Create custom merchandise with an inspiring slogan or logo and sell them online or at events.
Bake Sale: Collaborate with local bakers or families to sell homemade goods.
Craft Fair: Host a fair where local artisans can sell their products, donating a portion of sales.
Community Challenges
Dance-a-Thon: Encourage participants to keep dancing as long as they can, with pledges for each hour danced.
Trivia Night: Hold a quiz competition with entry fees and small prizes for the winners.
Online Fundraising
Crowdfunding Campaign: Use platforms like GoFundMe to tell a compelling story about the families and their needs.
Virtual Auction: Collect donated items or services (like local business gift cards or handmade crafts) and auction them off online.
Social Media Challenges: Create a challenge (e.g., "Rib Resilience Challenge") that participants can share while donating.
School and Kid-Centric Fundraisers
Coin Drive: Set up donation jars in schools or libraries where kids and families can contribute spare change.
Art Show: Encourage children to create artwork for a gallery-style event, with pieces available for purchase.
Health and Wellness Activities
Yoga for a Cause: Organize a donation-based yoga or fitness class.
5K Run/Walk: Partner with local gyms or fitness centers for a community race event.
Seasonal and Holiday Themes
Holiday Gift Wrapping Service: Set up a gift-wrapping station during the holiday season in exchange for donations.
Pumpkin Patch or Christmas Tree Sale: Collaborate with local farms or nurseries to sell pumpkins or trees, donating part of the proceeds.
Corporate and Partner Fundraisers
Matching Donation Campaign: Partner with local businesses to match donations up to a certain amount.
Dine-to-Donate Nights: Arrange with restaurants to donate a percentage of sales on a designated night.
Specialized Events
Awareness Workshops: Host sessions to educate the community about VEPTR and the challenges faced by families, encouraging donations.
Silent Auction or Raffle: Collect high-value items or experiences as prizes to draw participants.
Garage or Rummage Sale: Families and community members can donate items for sale.
Personalized Outreach
Storytelling Night: Invite families to share their experiences and journeys with VEPTR, inspiring empathy and support.
Donation Sponsorships: Set up donation tiers tied to specific needs, like medical equipment or travel costs for appointments.
Gaming and Entertainment
Gaming Tournament: Organize a video game or board game competition with entry fees.
Movie Night: Set up an outdoor or community center screening, selling tickets and refreshments.
By combining creativity and emotional connection, these fundraisers can provide meaningful support to families of VEPTR children while fostering community spirit.
Fundraising Ideas
Contact:
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Latest Statistics:
Survival rate: In a 14-year clinical trial, the patient survival rate was 95.1%.
AVR scores: In the same trial, 92% of patients maintained or improved their assisted ventilatory rating (AVR) scores.
Complications: One study found a 41% complication rate for patients who had final fusion surgery.
Cobb angle correction: One study found that the average Cobb angle correction was 26% immediately after surgery, but only 18% at the 2-year follow-up.
Age at surgery: One study found that the mean age at the end of VEPTR treatment was 13.8 years.
Number of expansion procedures: One study found that the average number of expansion procedures was 4.26.
Vertical Expandable Prosthetic Titanium Rib (VEPTR) Overview ...
VEPTR is a surgical treatment for early onset scoliosis (EOS). It can grow with the child, which means they may need fewer surgeries as they get older. VEPTR can also help children with thoracic insufficiency syndrome (TIS) breathe easier.
Long term outcome of vertical expandable prosthetic titanium rib ...
VEPTR, vertical expandable prosthetic titanium rib. Younger age at first VEPTR implantation and higher major curve's and main kyphosis.